After living for 5481 days, i finally found my hero. He is Mattie Stepanek.



He died at a young age at 14 years old in 2004 due to a rare form of muscular dystrophy called mitochondrial myopathy and something called dysautonomia. That means that his 'automatic' systems, like breathing, heart rate, body temperature, oxygenation, digestion, and things like that don't always work well on their own. So, he use extra oxygen all the time, and when he's tired or sleeping, he use a ventilator that breathes for him and some other machines, too. He also use a power wheelchair much of the time to save energy and move my medical equipment around. His two brothers and one sister died during childhood from the same thing he have, and his mother uses a power wheelchair all the time because she has the adult form of this disability. He's like a child prodigy, and he started writing poetry at the age of 3 and wrote 7 books alrdy. From young, he have 3 wishes. First: to have his books published. Second: To meet Jimmy Carter. And Thirdly: To meet Oprah Winfrey. He fulfilled all his wishes. When he died, many cried for him. He's known to all as the "Peacemaker".

Y'all might be thinking why im writing this but becos Ms Pang showed us a video on him tday. I almost cried watching it lah.

Here's one of his poem titled "Facing the Future"

After living for 5481 days, i finally found my hero. He is Mattie Stepanek.



He died at a young age at 14 years old in 2004 due to a rare form of muscular dystrophy called mitochondrial myopathy and something called dysautonomia. That means that his 'automatic' systems, like breathing, heart rate, body temperature, oxygenation, digestion, and things like that don't always work well on their own. So, he use extra oxygen all the time, and when he's tired or sleeping, he use a ventilator that breathes for him and some other machines, too. He also use a power wheelchair much of the time to save energy and move my medical equipment around. His two brothers and one sister died during childhood from the same thing he have, and his mother uses a power wheelchair all the time because she has the adult form of this disability. He's like a child prodigy, and he started writing poetry at the age of 3 and wrote 7 books alrdy. From young, he have 3 wishes. First: to have his books published. Second: To meet Jimmy Carter. And Thirdly: To meet Oprah Winfrey. He fulfilled all his wishes. When he died, many cried for him. He's known to all as the "Peacemaker".

Y'all might be thinking why im writing this but becos Ms Pang showed us a video on him tday. I almost cried watching it lah.

Here's one of his poem titled "Facing the Future"